About us

We are an association founded in Vic (Barcelona, Catalonia) of people with vulvar lichen sclerosus, the most common form. We come together to end the loneliness that many people feel when facing a little-known diagnosis.

How it all began

In the summer of 2021, two people with lichen met through a notice that one of them had posted that same morning at a medical centre. The notice said she had been diagnosed with lichen and was looking for other women with the same diagnosis. That same afternoon she received a call. That was how it all started.

A few months later we created a WhatsApp group and began meeting in person at a café. Those were moments when we shared our experiences and questions about the diagnosis.

We had the opportunity to take part in a video creation to raise awareness of the condition we shared. This was the result.

Thanks to this experience, we finally came together as an association on 5 May 2025 with the hope of creating a community to transform fear and loneliness into strength and mutual support.

Do you have any questions?

If you have lichen or know someone who does, write to us. We are here to support you.